Because Fiona can't take Bactrim she's at risk for opportunistic infections. The one they are most worried about is pneumocystis pneumonia, or PCP. We are working on getting her started on another medicine called Pentamidine. It has to be administered in an IV, and they have to monitor her heart while they give it to her. I'm a little nervous about it.
We drew labs on Monday to check Fiona's lymphocytes. I'm still waiting to see the results. One of the things I love most about Cincinnati Children's is that they post her labs to her account. I usually have the results within a day. I hate waiting for someone to call me with her results.