Friday, November 20, 2015


Fiona continues to be mysterious. She had labs drawn this week. Her helper t-cell count is 1306!!!! That's normal. The mystery is how did it go away? Her low numbers were worse than AIDS. T-cell deficiencies don't just go away.

Her immunoglobulins are also normal. Her igg dropped from 2056 in July to 821 this week. I'm concerned that it's still going down. We don't know if she's making her own igg, or if her dose was too high. For now we are just watching and waiting. She's developed some nasal congestion today. This is the first time she's been sick in a long time.

I've loved not giving her treatments for the past 2 months. I'm trying to get used to her new normal, which is normal.

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