Tuesday, September 24, 2013

The elephant in the room

I think about the possibility of a bone marrow transplant often. It would be a cure. No more IV treatments, and no sub-q. It sounds good to me. The doctor's have told us that her numbers aren't low enough yet. Her T cells are low, but she has good function. They are still watching her numbers.

What doesn't sound good to me is how much we would make Fiona suffer. Our family would suffer too. We've been told that she would be in the hospital for a few months, then outpatient for a few more. We've read the information they gave us. Life during and after the transplant would be difficult. The rules are crazy and complicated.

It's hard to know that there's a cure, but she has to get worse to be cured.

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