Wednesday, September 30, 2015

Fiona's labs

Fiona's latest labs are mostly normal. Her IGA and IGM are normal. Her IGG is high, which could mean that she's making her own, or that she's not metabolizing it as fast. All of her t-cells are in normal ranges. Her t-cells are responding well to stimulation, except for tetanus, which is about 1/4 of low normal. There are some other labs that are off, but I'm not sure about what they mean.

So you may be thinking this is great news. I should be excited, but I'm not really feeling it. I'm actually a little more uneasy and worried. Kids don't really outgrow this kind of immune deficiency, and some of the cells she's making aren't working well. If everything looked normal I think I would be more hopeful. It feels like her version of normal has changed.

In July her IGG was 2000, August was 1900, and we skipped a few infusions between then and September, when it was 1500. High normal IGG is 1200. I don't know if her IGG went down because she was getting too much, or if she was making more of it, and now she's not making enough. We've skipped a few weeks of infusions, and will be rechecking in two weeks when she has her antibiotic infusion.

She's been healthy for a few months. She's growing well. She's been going to primary, and she loves it! Last week was the primary program at church. She got up to the microphone and started telling a story about a storm with thunder and electricity. She ended with everyone is not doomed. She's been pretending to be a snake, or a mama pteranodon. Her babies, Tiny, Shiny, and Don are always hungry for meat, usually ostrich or pig meat.

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