Wednesday, August 13, 2014

no antibiotics

Our pharmacy wasn't able to get Fiona's antibiotic. According to the FDA it was supposed to be available after the 1st week of August. We don't know when it will be available again.

My kindle is working again! Fiona couldn't be more thrilled. I had to restore it to the factory settings, so I lost everything saved on it, but I'm happy that it's working in time for her next treatment. It's a great distraction tool.

We are giving Fiona ibuprofen to see if it helps calm the fi-beast. She seems to be doing better this morning. We're also dropping her dose of hizentra by 1 gram. Lowering her dose is scary, but it will let us see if she gets sick. She just fell asleep in my lap, so I think she's feeling a little better.

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