Sunday, April 13, 2014

Poor kid

What happens when you have two stomach viruses and take diflucan? You don't want to know. It was bad. Fiona had to have a bath. She has a really bad diaper rash, but at least it won't have yeast on it.

Fiona's mouth looks much better after 2 days of diflucan. She is eating a little more, but is still having trouble drinking. We have been able to avoid dehydration. I'm glad she's going to see a doctor tomorrow.

Today is treatment day, and I'm beyond excited to have supplies from BioRx again. Our rep found the tape we love, which is nice, because I've been buying it for $8 a roll. She also sent us barrier skin wipes, which aren't quite as sticky as the ones I found at Walgreens. This week we are trying a high flow needle set. I've heard that some people don't like them, but I'm trying to keep an open mind.

Fiona is feeling restless lately. After her brief taste of freedom she tries to escape the house every time the door opens. She cries when we drop James off at preschool. She wants to go to. I am grieving for her lost experiences. She'll never go to preschool, or nursery at church. I'm not sure she'll ever go to school. I'm going to ask the doctor tomorrow if it is safe for her to go to the zoo. She really loves animals, and this may be a good way to get her out of the house. We'll go when it's not crowded, keep her in her stroller, and not take her into any of the buildings.

1 comment :

  1. My heart hurts for her. Do you have a yard she can go out back in? Hugs and prayers. Make sure you and Christian take turns going to church, then your spiritual well can get full at least every other week.