Today

After talking to our local doctor's office and Cincinnati the plan is to switch Fiona to diflucan, which is a systemic antifungal. She has an appointment with our local doctor on Monday. Hopefully her thrush will clear up over the weekend.

I'm still trying to understand whether or not her stomach viruses are contagious. We don't know how long it will take for her body to clear the viruses. I read a journal article yesterday that said the mean time frame for someone with a compromised immune system to clear norovirus is 3 months. Ugh! I'm not comfortable taking her anywhere because I don't want her spreading a virus, and because the virus may be weakening her immune system.

Today we got our first box of hizentra and supplies from our old specialty pharmacy since January! They were able to find the tape we love, 3M kind tape, and skin barrier wipes. We are back to using 2 bottles for each infusion, instead of 5.

It's easy to forget that there is anything wrong when Fiona is healthy, but when she gets sick, she really gets sick. Hopefully it won't take 3 months for her to get better.