Christian and I went to an Immune Deficiency Foundation (IDF) meeting today. We got to meet other people getting the same treatment Fiona is on. It was amazing. Most of the people there were patients or spouses. We were the only parents of a young child with an immune deficiency there.
A college student was sitting at our table who was diagnosed with an immune deficiency when he was a baby. It was hard not to stare at him. It was like seeing Fiona's future. For the first time I realized that this will become normal, and that she can have a normal life.
We learned about a great opportunity to go to a plasma donation center. We can learn about the donation process and thank donors. I wonder if they even know what they are donating for?
We also got to meet reps from other medical supply companies. I feel better knowing that the exist just in case. We met the reps from two of the drug companies too. The kids were thrilled to see all of the pens, toys, and hand sanitizer we came home with.
This felt like a great next step in our learning process. I have lots of information to read and research. I'm so glad we went.