Thursday, December 12, 2013


Fiona is pale, and kind of grey. She has dark circles under her eyes and her eyes are a little sunken. It may just be another of her mysterious things, like the low grade fever and stomach issues. We are taking her to the infectious disease specialist tomorrow to get checked and to get her blood counts checked. The nurse I talked to seemed pretty concerned. She told me that if anything changes to take her to the emergency room.

I ordered a box of pediatric masks today. We are going to try to start masking her when she leaves the house. I'm sure it will take some getting used to. Going to doctor's offices and the hospital are making me increasingly nervous. Eventually she will get sick, but I'm hoping a mask will give her a little extra protection.

Our amazing daughter Katherine is working to get Fiona's story on the news. She is very driven and determined to help her sister. She is always coming up with new ideas to reach more people.

Fiona's fundraiser

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