Tuesday, December 17, 2013

treatment pain

Yesterday I had to do Fiona's treatment without numbing cream. She's developed an unusual reaction to the numbing cream. It's supposed to make your skin turn white, which it did for the first 20 or so times that we used it, but now it leaves a raised, bumpy, red rash for about two weeks.

She says that you should all feel free to send sympathy gifts, mainly chocolate. :) It was horrible. She screamed for the first 10 minutes. Tomorrow we are going to Cincinnati and will be asking the doctor if there are any other options for pain control, someone mentioned numbing spray, but she may be too young to use it.

From what I can guess her treatment is roughly the equivalent of sticking three tacks into your skin and injecting about a teaspoon and a quarter of liquid under your skin. Most subcutaneous injections are less than half a teaspoon. Ouch!

Fiona's fundraiser


  1. Poor little sweetheart.
    Karen, I know from years of giving Insulin shots to my Mom and to Bob, that it is so important to keep switching the location of the shot, to keep them from getting hard, red lumps. I'm sure you know that, but just thought I would pass it on.
    Love to you all Aunt Allouise

    1. Thanks Allouise! One of the first thing the nurse told me was to rotate shot locations. She said that Fiona would get lumps if we didn't rotate.

  2. Karen, I know some of the sprays that were used in the past have been found to be unsafe for children. I wonder if you could ask for a small bottle of liquid Lidocaine? I've used that for Elainah before. I know it works well for topical numbing.

    I'm also going to share these links that I found this morning.

    Here's one called Zingo: http://www.greensvision.com/Zingo.html

    Here's a needle free injection: http://www.jtip.com/#2

    Here's one call Synera: http://www.synera.com/

    I don't know if any of these work for children or if they are covered by insurance. I'm just throwing out some options for you to talk with the doctor about.

    xo Rebecca

    1. Thanks for finding those! Zingo is fascinating, but only for patients over 3. I've looked into jtip hoping to reduce the pain she has from blood draws. It's only a needle free injector, and the question is what do we inject? We don't know if she is allergic to all lidocaine or just topical. Synera would be a great option, but it's not approved for in home use. You found more options than I did. When I look I don't find anything. I am waiting to hear back from the doctor because her last treatment was miserable. I'm not going to let her be in that much pain once a week just because they don't have a good solution. I expect them to find something to make her comfortable.