We've now talked to 3 people in benefits about getting an exception to stay with our specialty pharmacy. The first got some kind of answer for us, but wouldn't talk to me because I'm not the employee. The second told Christian that she would get back to him. He called two days later and she's out of the office for a week. The third is working on it. I hope we get an answer soon. We are down to the last dose of hizentra. I'm sure it will take some time to get a new order set up and shipped. I'm hopeful that we will have an answer on Monday.
Fiona's fundraiser
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