We found a way to go back to Biorx as our specialty pharmacy. After a long drawn out fight I feel like we won. Thanks to Melissa at Biorx, and my husband's employer's HR department we finally figured it out. It will be such a relief to go back to our normal treatments and routines.
Fiona continues to be healthy. We feel very blessed that she isn't sick. Finding other moms of immune deficient kids has shown me what a miracle her health is. I never understood what the doctors meant when they told us that she should be very sick, until I read about other kids like her.